News for 2009

HIV drug linked to deadly skin condition

Intelence 100x100Tibotec Therapeutics, makers of prescription medication Intelence (etravirine) used to control HIV infection in adults, recently notified health care professionals that the medication has been linked to a rare but life-threatening known as Stevens Johnson Syndrome, SJS.

Early this year, Intelence was approved by the the (FDA) for use in the treatment of HIV. At that time, data indicated a slight risk of SJS.

SJS, and its most severe form, toxic epidermal necrolysis, TEN, are identified by a rash on the skin that blisters over causing the skin to peel off in sheets. The condition is extremely painful and often requires hospitalization to treat the open wounds on the skin, mouth, eyes and other mucous membranes. Complications include infection, dehydration, vision problems, organ dysfunction and death.

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Epilepsy, bipolar drug linked to rare skin reaction

Another medication has been added to the list of drugs that have been associated with a rare but life-threatening skin reaction known as Stevens Johnson Syndrome (SJS), and its most severe form, toxic epidermal necrolysis (TEN). Lamictal (Lamotrigine )ODT (orally disintegrating tablets) is a prescription medication for epilepsy and for the maintenance of bipolar disorder. It’s maker, GlaxoSmithKline Pharmaceuticals (GSK) has added the conditions to the PRECAUTIONS and ADVERSE REACTIONS sections of its labeling.

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SJS victim says ice cream led him to a speedy recovery

It started off as a nice gesture on Waldek Kaczocha’s part. The owner of Razzleberry Ice Cream Lab in Oak Ridge, Tennessee, thought a little Lemon Ice might soothe the blistered throat of his customer who was hospitalized with a rare but serious reaction to medication known as Stevens Johnson Syndrome (SJS). So he sent a bowl to Joe Warner through his wife, MeChell, and it proved to be a blessing.

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Young SJS survivor is featured on Sky TV show The Real A&E

Sky TV show The Real A&E, a British “fly-on-the-wall” documentary set in UK’s largest accident and emergency department, will feature the story of Charlie Griffiths, a boy who has reoccurring bouts of a serious known as Stevens Johnson Syndrome (SJS).

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Cancer drug linked to serious skin condition SJS/TEN

The (FDA) along with OSI Pharmaceuticals, Inc. and Genetech has announced that new safety information has been added to the WARNINGS AND PRECAUTIONS sections of the prescribing information for the cancer drug erlotinib, known by the brand name Tarceva. The new labeling warns health care professionals of the risk of sometimes fatal conditions of gastrointestinal perforations, and bullous, blister and exfoliative skin conditions including cases suggestive of Stevens Johnson Syndrome (SJS) and its most serious form, toxic epidermal necrolysis (TEN), during the use of Tarceva.

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Rachel continues on road to recovery from SJS

SpunkyRachel is back and she’s looking great. You may remember SpunkyRachel from previous posts. We’ve been following her recovery from Stevens Johnson Syndrome (SJS) on YouTube. Her videos offer a personal insight into her emotional struggle as she copes with the physical recovery from the rare but life-threatening .

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Boy suffering with SJS/TEN receives free exam from hospital

When he was not quite 2 years old, James Lumasag was diagnosed with a rare but life threatening after receiving a round of to treat a cough and fever. The toddler fought for his life in the intensive care unit of a hospital, where he received 22 bags of plasma as his skin peeled away from his body. “His whole body, except his head, looked totally burnt,” his mother Merlyn said. “James suffered too much.”

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New drugs investigated for possible skin reactions

You’ve likely seen the commercials for Detrol. A woman is sitting in her doctor’s office and a woman-shaped figure similar to the ones seen on bathroom doors, is encouraging her to talk to her doctor about her frequent and sudden urges to go to the bathroom. The treatment has helped women find relief from overactive bladder.

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Utah woman dies from complications of SJS

“This is not right and could have been prevented,” writes someone who commented on Cloanne Andrus Pesquera’s obituary in The Spectrum. Cloanne, 41, died May 30, 2009, after battling a rare but life-threatening condition called Stevens Johnson Syndrome, or SJS. The woman who commented on the story said she had lost her mother to SJS/TEN in 2006. She believes Cloanne’s death, like her mother’s, could have been prevented.

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Woman raises money to help Pakistani boy with SJS

A Leeds, England woman is raising money to help a 4-year-old Pakistani boy see again. She could relate.

Patricia Roberts is a survivor of two bouts of Stevens Johnson Syndrome (SJS), a rare but life-threatening condition caused by an adverse reaction to common medication. The condition presents with a rash on the skin that blisters over and causes the skin to peel off in sheets. Victims are susceptible to infection and are often treated in burn units. Blisters also can form in the mouth or on the eyes, which can lead to dehydration or vision problems.

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