News for May, 2009

Woman raises money to help Pakistani boy with SJS

fundraiser pig 100x100A Leeds, England woman is raising money to help a 4-year-old Pakistani boy see again. She could relate.

Patricia Roberts is a survivor of two bouts of Stevens Johnson Syndrome (), a rare but life-threatening condition caused by an adverse reaction to common medication. The condition presents with a rash on the skin that blisters over and causes the skin to peel off in sheets. Victims are susceptible to infection and are often treated in burn units. Blisters also can form in the mouth or on the eyes, which can lead to dehydration or vision problems.

Read the rest of this entry »

Family who lost daughter to SJS releases songs for charity

The family of a 19-year-old girl who died last March from complications of Stevens Johnson Syndrome () is releasing recordings of songs she performed to help raise money for the critical care unit at Nottingham City Hospital in England, according to This is Derbyshire.

Amy Lightfoot, was diagnosed with in January and spent several weeks in the critical are unit at Nottingham City Hospital until her death last March. is a rare but life-threatening condition in which a rash forms on top layer of skin, blisters over and peels away. Blisters can also form on the eyes, throat, mouth and internal organs. is a severe adverse reaction to medication, such as ibuprofen, and anti-seizure medication.

The recordings will be sold along with a CD by the band No Eyed Deer, of which Amy and her boyfriend Lee Brown were members. Amy’s parents say selling the music to raise money for the hospital is a perfect way to give back to the hospital that cared for her.

“The staff who treated Amy at the hospital were just fantastic, but being there for so long makes you realize the cost of the equipment they are using – a ventilator alone costs about 30,000 pounds,” Amy’s mother Carol said.

Carol said she was previously unaware of her daughter’s recordings, which are titled Satellite and Waiting. “They were done while she was studying at the Joseph Wright Centre and we thought releasing them would be a nice way of remembering Amy, while raising money at the same time,” she said.

SJS victim’s sight restored after 46 years

chart eye exam 150x150The year was 1963. Jenny O’Connell, then 11, was roused out of bed for her sister’s birthday and realized she couldn’t see. She was suffering from a severe adverse reaction to medication known as Stevens Johnson Syndrome, or . The condition blistered her skin and eyes, causing blindness. At best, she was only vaguely aware when doctors shined a light in her eyes. But the vision impairment didn’t keep her from living. She married and had a son and daughter – three people she had never had the opportunity to see.

Read the rest of this entry »

New SJS warnings added to cancer treatment drug

The Food and Drug Administration (FDA) in partnership with OSI Pharmaceuticals Inc., and Genentech have issued a warning letter to healthcare professionals informing them of new safety information added to the WARNINGS AND PRECAUTIONS section of the cancer treatment drug Tarceva.

The new information, gathered from a clinical study and postmarketing reports, revealed sometimes fatal incidences of gastrointestinal perforation, bullous, blistering and exfoliative skin conditions including cases suggestive of Stevens Johnson Syndrome () and/or toxic epidermal necrolysis (TEN) and ocular disorders including corneal perforation or ulceration.

Read the rest of this entry »

Beasley Allen attorney warns public of serious adverse drug reactions

Consumers are urged to take a close look at the labels of both over-the-counter and prescription medications and be aware of the potential side effects, according to Frank Woodson, shareholder with Beasley Allen Law Firm. Woodson was quoted in a recent issue of Lawsuit.com, warning consumers about Stevens Johnson Syndrome, or , a rare but life-threatening reaction to many frequently used medications.

Read the rest of this entry »

Canadian woman with SJS goes home from hospital

Good news for Canadian resident Lisa, the little sister of Dundas Star News managing editor Mark Cripps. The woman was diagnosed with Stevens Johnson Syndrome () two-plus weeks ago after taking that had been prescribed to her following minor surgery. She suffered a rare but life-threatening severe adverse reaction to the , , which resulted in rashes all over her body that blistered over and caused her skin to peel off in sheets. After a two-week stay in the hospital, where she was treated as if she had suffered serious burns, the woman was able to go home.

Read the rest of this entry »