News for April, 2010

Mother says SJS awareness is a must: ‘Ignorance is not bliss’

sjs baby 100x100My son was 2.5 years old when he was admitted to the Children’s Hospital on Nov 7th, 2009, in Winnipeg, MB Canada. I also had never heard of . Today, it is all I think about.

The mother of young Liam refers to herself simply as Melanie. But she so identified with Avi Selk’s recent Dallas Morning News story about a rare skin condition known as Stevens Johnson Syndrome, or , that she felt compelled to comment on the story.

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Accutane linked to bowel problem, serious skin condition

A new study on the side effects of Accutane published in the American Journal of Gastroenterology suggest that the acne drug may increase the risk of developing bowel problems. The findings come just weeks after a New Jersey jury awarded an Alabama man $25.16 million because they believed Roche’s Accutane caused the man to develop inflammatory bowel disease (IBD), a group of digestive disorders that includes ulcerative colitis and Crohn’s disease.

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Flu treatment and prevention drug linked to serious allergic reaction

A medicine used to treat and help prevent the flu may put patients at risk for a rare but life-threatening condition in which the skin peels off the body in sheets, according to the Food and Drug Administration (FDA)’s Center for Drug Evaluation and Research. The agency notified the public that it has approved safety label changes for Relenza (zanamivir) Inhalation Powder for oral inhalation. The Adverse Reactions section of the drug’s new safety label now includes a risk of , including serious cutaneous reactions (e.g. erythema multiforme, Stevens Johnson Syndrome, , and toxic epidermal necrolysis, TEN).

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Hypertension drug’s new label warns of SJS, TEN

A medication used for the management of hypertension now includes an updated safety label that warns patients of a rare but serious skin condition, according to the Food and Drug Administration (FDA)’s Safety Information and Adverse Event Reporting Program. The new safety label for Inderide (propranolol HCL/hydrochlorothiazide) tablets carries a warning of “erythema multiforme including Stevens Johnson Syndrome (), exfoliative dermatitis, including toxic epidermal necrolysis (TEN)” in the Adverse Reactions section.

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Heartburn drug linked to SJS/TEN

A drug used to treat acid reflux disease has been linked to a rare but serious skin condition known as Stevens Johnson Syndrome () and its more severe form, toxic epidermal necrolysis (TEN), according to the Food and Drug Administration (FDA). Dexilant (dexlansoprazole) delayed release capsules now includes a warning of the risk of and TEN in the Adverse Reactions section of its safety label. The updated label states that in post-marketing review, some patients taking Dexilant suffered immune system disorders including anaphylactic shock that required emergency intervention, and and TEN. Some cases were fatal.

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SJS survivor shares story with local, national media

When Nichole Chapman, of Klamath Falls, Ore., was just 6 years old, she developed a severe skin that doctors diagnosed as a bad case of measles. But the turned into huge blisters and soon Nichole’s skin was peeling off her tiny body. Doctors began to realize that it wasn’t measles that was eating away at Nichole’s skin, it was a rare and potentially life threatening to medication known as Stevens Johnson Syndrome, or .

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SJS survivor said the condition made her ‘want to die’

Cecilia Garcia told the Dallas Morning News she wanted to die because the pain of her skin peeling off in sheets was just too unbearable. But instead, doctors fought to keep her alive by putting her into a drug-induced coma. For three weeks they watched and waited as Garcia’s body made a slow recovery. Garcia was diagnosed with Stevens Johnson Syndrome, or , a rare skin sensitivity disorder. What caused it, doctors say, was a simple medication to treat the common cold.

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