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When he was not quite 2 years old, James Lumasag was diagnosed with a rare but life threatening skin condition after receiving a round of antibiotics to treat a cough and fever. The toddler fought for his life in the intensive care unit of a hospital, where he received 22 bags of plasma as his skin peeled away from his body. “His whole body, except his head, looked totally burnt,” his mother Merlyn said. “James suffered too much.”
“This is not right and could have been prevented,” writes someone who commented on Cloanne Andrus Pesquera’s obituary in The Spectrum. Cloanne, 41, died May 30, 2009, after battling a rare but life-threatening condition called Stevens Johnson Syndrome, or SJS. The woman who commented on the story said she had lost her mother to SJS/TEN in 2006. She believes Cloanne’s death, like her mother’s, could have been prevented.
The family of a 19-year-old girl who died last March from complications of Stevens Johnson Syndrome (SJS) is releasing recordings of songs she performed to help raise money for the critical care unit at Nottingham City Hospital in England, according to This is Derbyshire.
Amy Lightfoot, was diagnosed with SJS in January and spent several weeks in the critical are unit at Nottingham City Hospital until her death last March. SJS is a rare but life-threatening condition in which a rash forms on top layer of skin, blisters over and peels away. Blisters can also form on the eyes, throat, mouth and internal organs. SJS is a severe adverse reaction to medication, such as ibuprofen, antibiotics and anti-seizure medication.
The recordings will be sold along with a CD by the band No Eyed Deer, of which Amy and her boyfriend Lee Brown were members. Amy’s parents say selling the music to raise money for the hospital is a perfect way to give back to the hospital that cared for her.
“The staff who treated Amy at the hospital were just fantastic, but being there for so long makes you realize the cost of the equipment they are using – a ventilator alone costs about 30,000 pounds,” Amy’s mother Carol said.
Carol said she was previously unaware of her daughter’s recordings, which are titled Satellite and Waiting. “They were done while she was studying at the Joseph Wright Centre and we thought releasing them would be a nice way of remembering Amy, while raising money at the same time,” she said.
The year was 1963. Jenny O’Connell, then 11, was roused out of bed for her sister’s birthday and realized she couldn’t see. She was suffering from a severe adverse reaction to medication known as Stevens Johnson Syndrome, or SJS. The condition blistered her skin and eyes, causing blindness. At best, she was only vaguely aware when doctors shined a light in her eyes. But the vision impairment didn’t keep her from living. She married and had a son and daughter – three people she had never had the opportunity to see.
Russian prosecutors have closed their investigation into the mysterious death of investigative journalist Yuri Shchekochikhin, citing a rare but life threatening adverse reaction to medication as the likely cause of his death, known as toxic epidermal necrolysis, or TEN, according to Reuters.
A 7-year-old girl who received a tetanus shot along with several other children at school is now in Sentra Medika Hospital in Cimanggis, Depok, receiving treatment for Stevens Johnson Syndrome (SJS), according to The Jakarta Globe.
Judy Ziegler’s eyes had endured a lot over the years. In 1995, the Myersville, Maryland woman experienced severe scarring in her eyes when she had an adverse reaction to medication resulted in toxic epidermal necrolysis (TEN).
If you happen to fall ill during this season from colds and flu, take note of the prescriptions your doctor hands you, especially those for common antibiotics. Two years ago, my doctor prescribed Ketek for a lingering sinus infection that other meds just weren’t knocking out. He warned me to only take it if I really felt I needed it. He said it was a very strong antibiotic.
Supermarket pharmacies throughout Pennsylvania are offering free antibiotics for those with prescriptions in an effort to ease the economic crisis for customers. However, some health care providers fear the free meds may do more harm than good, according to ABC Action News 6 in Philadelphia.
If you or a family member has suffered from the rare but life-threatening adverse reaction to medication known as Stevens Johnson Syndrome (SJS), or its most severe form, toxic epidermal necrolysis (TEN), you already may be aware of the value information available at the Stevens Johnson Syndrome Foundation site (www.sjssupport.org). Unless you study the site, you may not be away of all the resources available.
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