Beasley, Allen, Crow, Methvin, Portis & Miles, P.C.

My son was 2.5 years old when he was admitted to the Children’s Hospital on Nov 7th, 2009, in Winnipeg, MB Canada. I also had never heard of SJS. Today, it is all I think about.

The mother of young Liam refers to herself simply as Melanie. But she so identified with Avi Selk’s recent Dallas Morning News story about a rare skin condition known as Stevens Johnson Syndrome, or SJS, that she felt compelled to comment on the story.

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Just six months before her body lost its fight with Stevens Johnson Syndrome (SJS), 9-year-old Kaitlyn Sierra Langstaff penned this poem:

TOUCH IS THE SENSE OF LOVE
I’m scared,
 You hold me.
I cry,
 You hold me close.
I’m hurt,
 You hold me closer.
Touch is the sense of love.

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The mother of 11-year-old Sabrina Johnson was clearly agitated when last summer a jury found Johnson & Johnson and McNeil Laboratories not liable for her daughter’s strong adverse reaction to over-the-counter medicine that left her blind. To Sabrina’s mother Joan, who was quoted by ABC 7 Eyewitness News, the ruling sent a painful message: “It means that nobody cares that she has been blinded. It means that nobody cares that she was almost tortured to death. That’s got to matter to somebody. And no, you should not see children, or mothers watching their children die. You’ve got to look into some of these cases.”

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