News Tagged ‘Dallas

Mother says SJS awareness is a must: ‘Ignorance is not bliss’

sjs baby 100x100My son was 2.5 years old when he was admitted to the Children’s Hospital on Nov 7th, 2009, in Winnipeg, MB . I also had never heard of . Today, it is all I think about.

The mother of young Liam refers to herself simply as Melanie. But she so identified with Avi Selk’s recent Dallas Morning News story about a rare skin condition known as Stevens Johnson Syndrome, or , that she felt compelled to comment on the story.

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SJS survivor said the condition made her ‘want to die’

Cecilia Garcia told the Dallas Morning News she wanted to die because the pain of her skin peeling off in sheets was just too unbearable. But instead, doctors fought to keep her alive by putting her into a drug-induced coma. For three weeks they watched and waited as Garcia’s body made a slow recovery. Garcia was diagnosed with Stevens Johnson Syndrome, or , a rare skin sensitivity disorder. What caused it, doctors say, was a simple medication to treat the common cold.

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