News Tagged ‘England

Woman raises money to help Pakistani boy with SJS

A Leeds, England woman is raising money to help a 4-year-old Pakistani boy see again. She could relate.

Patricia Roberts is a survivor of two bouts of Stevens Johnson Syndrome (SJS), a rare but life-threatening condition caused by an adverse reaction to common medication. The condition presents with a rash on the skin that blisters over and causes the skin to peel off in sheets. Victims are susceptible to infection and are often treated in burn units. Blisters also can form in the mouth or on the eyes, which can lead to dehydration or vision problems.

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Family who lost daughter to SJS releases songs for charity

The family of a 19-year-old girl who died last March from complications of Stevens Johnson Syndrome (SJS) is releasing recordings of songs she performed to help raise money for the critical care unit at Nottingham City Hospital in England, according to This is Derbyshire.

Amy Lightfoot, was diagnosed with SJS in January and spent several weeks in the critical are unit at Nottingham City Hospital until her death last March. SJS is a rare but life-threatening condition in which a rash forms on top layer of skin, blisters over and peels away. Blisters can also form on the eyes, throat, mouth and internal organs. SJS is a severe , such as ibuprofen, antibiotics and anti-seizure medication.

The recordings will be sold along with a CD by the band No Eyed Deer, of which Amy and her boyfriend Lee Brown were members. Amy’s parents say selling the music to raise money for the hospital is a perfect way to give back to the hospital that cared for her.

“The staff who treated Amy at the hospital were just fantastic, but being there for so long makes you realize the cost of the equipment they are using – a ventilator alone costs about 30,000 pounds,” Amy’s mother Carol said.

Carol said she was previously unaware of her daughter’s recordings, which are titled Satellite and Waiting. “They were done while she was studying at the Joseph Wright Centre and we thought releasing them would be a nice way of remembering Amy, while raising money at the same time,” she said.

SJS victim’s family helps raise funds for children’s hospice

Joe Way may have passed away in May, but he leaves behind a legacy that will touch lives in his community of Cornwall, England, forever.

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Hepatitis C treatment proven effective but linked to SJS

PEGASYS, a new medication proven effective in the treatment of hepatitis C for Latino patients caused a severe adverse skin reaction known as erythema multiforme major, or Stevens Johnson Syndrome (SJS), in patients during post-approval use, according to Cloud Computing Journal. The article referenced a study published in the New England Journal of Medicine.

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Family raises funds for children’s hospice after son dies from SJS

Sometimes we forget how lucky we are.

Today I read the story of Joe Way of England. He was born just two and a half months before my son, on September 5, 2003. Though an ocean apart, he was not unlike my son. He was born healthy to a loving family. But at a week old, he contracted meningitis and eventually was diagnosed with Angelmans syndrome, a neuro-genetic disorder that can cause developmental delays, seizures and jerky movements. It is so named because those who suffer from the condition appear to have a happy, joyful demeanor. In order to control the seizures, Joe was put on Topiramate, an anticonvulsant.

“We were warned about the usual – loss of appetite, liver problems, etc., but not SJS (Stevens Johnson Syndrome),” his family writes in their online journal Joe Way Inspired.

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