News Tagged ‘Julie McCrawley

SJS Foundation established to give answers to those with SJS

It was bad enough that Jean McCrawley’s infant daughter Julie was diagnosed with epilepsy, but two weeks after she was prescribed phenobarbatol to treat her seizures, she woke up with a swollen eyes and a high fever. Jean took her daughter to the doctor who discovered blisters forming on the little girl’s shoulders and mouth. He diagnosed her with chicken pox.

But the blisters got worse. They spread down her throat and little Julie was unable to drink her bottle because of the pain. Jean rushed her daughter to the hospital, where doctors continued to administered the phenobarbatol for her seizures. But Julie’s health continued to decline. Four days later the little girl’s lungs collapsed and her skin began coming off in sheets. That’s when a nurse realized what was going on. “This is Stevens Johnson Syndrome (SJS),” she said. Jean was relieved to have a diagnosis, but the doctor said, “This is extremely serious. She could die.”

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