SJS is rare but life threatening, and it can happen to anyone regardless of age. The average person has about a one in a million chance of developing the condition, which is most often described as an allergic reaction to medication. Drugs most often associated with SJS include anti-seizure and anti-viral medications, ibuprofen, antibiotics and sulfur drugs. Often, doctors cannot pinpoint a specific drug that causes a reaction.

“It’s still terrifying not knowing the cause,” Kelly told ABC 13. The memories are enough to give any mother nightmares. “She swelled up … She was unrecognizable,” she said. SJS begins with a painful rash that can cause the skin to peel off in sheets. Sufferers are at risk for serious infection and even death.

Doctors advise consumers and parents in particular to be aware of any reactions experienced after taking medication. Signs of allergic reaction to medication may include a rash, and sores on the lips, tongue, mouth, nose or vaginal area. If reactions like these are noticed, the offending medication should be stopped and medical attention sought immediately.

Kelly hopes other parents don’t confuse the serious symptoms of SJS with chickenpox. “It could be a fatal mistake,” she said. Kelly is hoping to have August designated as SJS Awareness Month.

SOURCE: Stevens Johnson Syndrome › Mother hopes to designate August as SJS Awareness Month

Ralph was rushed to Miami Valley Hospital in Dayton and was diagnosed with toxic epidermal necrolysis, or TEN. TEN is a severe form of the hypersensitivity disorder known as Stevens Johnson Syndrome, or SJS. The condition occurs as a severe reaction to medication and presents as a rash that blisters over, causing the skin to peel off in sheets. Mucus membranes such as those on the eyes and in the mouth also can blister over. Complications include infection, dehydration, blindness and even death.

Phenytoin, made by Mylan Pharmaceuticals and sold under the name Dilantin, was listed as the culprit.

Ralph never recovered. He died on May 27, 2006, from TEN. Amy has since filed a lawsuit against the Mylan Pharmaceuticals and Mylan Inc., on behalf of the estate of her late husband Ralph. Amy says her husband would not have taken the drug had he known of the potential for serious side effects.

The 10-count lawsuit claims the drug maker repeaed huge profits while concealing from the public the dangers of taking Dilatin/Phenytoin. The lawsuit seeks punitive and compensatory damages for Ralph’s injuries, pain and suffering. It also seeks damages to Ralph’s estate.

SOURCE: Stevens Johnson Syndrome › Wife files lawsuit against drug maker