Man shares SJS struggle on YouTube video
Rev. Samuel Irwan Santoso of Indonesia speaks with a heavy accent, but the meaning of his words are clear – he has no tears. “I have no tears for five years,” he says on his YouTube video. “You must be happy because you have tears. You can cry.”
In January 1998, Santoso came down with a fever and sore eyes. He went to two different doctors and received medication for his condition, but he became increasingly sicker. “Suddenly all my skin blistered. My eyes became blind,” he says as disturbing photos of him flash on the video. Santoso was admitted to the hospital and diagnosed with Stevens Johnson Syndrome (SJS).