News Tagged ‘SJS Foundation

SJS Foundation founder wins Extreme Makeover contest

Jean McCawley is a most deserving recipient of ABC 7’s Extreme Makeover: American Dream contest. The Westminster, Colorado, woman has been through a lot in the past several years, but she has kept her focus on helping others.

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Bear and blanket program gives comfort to kids with SJS

Stevens Johnson Syndrome (SJS) and its most serious form Toxic Epidermal Necrolysis (TEN) are serious, life threatening conditions caused by common medication. They are defined as hypersensitivity disorders that affect the skin and mucous membranes, causing the top layer of skin to peel off in sheets and painful blisters to form on the eyes and mouth. It affects people of all ages and genders. Infants and children are not exempt. The drugs most commonly associated with and TEN in children are ibuprofen-based medications such as Children’s Motrin. Other drugs that can cause and TEN include anti-seizure medications and .

The Foundation was founded as a community for adults and children affected by the condition. It is a 501(c)3 nonprofit organization dedicated to promoting public awareness to adverse drug reactions. Tax-deductible donations help power the organizations Web site and enable its members to raise awareness of the condition and provide much needed support to others suffering from and TEN.

One of the organization’s outreach projects aims to provide comfort to the tiniest sufferers of and TEN. For a tax-deductible donation of $30, the organization provides a plush bear and blanket to a child with and TEN.

For more information about this important cause visit the SJS Foundation’s Donation Center. To participate in the bear & blanket program, send your $30 check payable to the Foundation, P.O. Box 350333
 Westminster, CO 80035-0333,
 USA. Please include Kids Comfort” in the memo section. Other donation opportunities also are detailed on the Web site.

SJS Foundation established to give answers to those with SJS

It was bad enough that Jean McCrawley’s infant daughter Julie was diagnosed with epilepsy, but two weeks after she was prescribed phenobarbatol to treat her seizures, she woke up with a swollen eyes and a high fever. Jean took her daughter to the doctor who discovered blisters forming on the little girl’s shoulders and mouth. He diagnosed her with chicken pox.

But the blisters got worse. They spread down her throat and little Julie was unable to drink her bottle because of the pain. Jean rushed her daughter to the hospital, where doctors continued to administered the phenobarbatol for her seizures. But Julie’s health continued to decline. Four days later the little girl’s lungs collapsed and her skin began coming off in sheets. That’s when a nurse realized what was going on. “This is Stevens Johnson Syndrome (SJS),” she said. Jean was relieved to have a diagnosis, but the doctor said, “This is extremely serious. She could die.”

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Young SJS victim creates Web site for children with SJS

About 300 people in the U.S. are diagnosed with Stevens-Johnson Syndrome (SJS) each year. It is a serious and life-threatening disorder often caused by an allergic reaction to prescription and over-the-counter medications, and it can affect people of all ages, including children. Those afflicted by the disease experience severe and often painful inflammation of the mucus membranes and, if left untreated, it can result in blindness, serious health problems, and death.

Julie McCawley became a victim of when she was just 11 months old. Her mother, Jean McCawley, established the Foundation in 1995 to provide the public and medical communities with information about the adverse allergic drug reactions and to serve as a support outlet for victims of and their families. Today, Julie is 14 years old and as a result of has lost vision in one of her eyes.

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