News Tagged ‘SpunkyRachel

Rachel continues on road to recovery from SJS

SpunkyRachel is back and she’s looking great. You may remember SpunkyRachel from previous posts. We’ve been following her recovery from Stevens Johnson Syndrome () on YouTube. Her videos offer a personal insight into her emotional struggle as she copes with the physical recovery from the rare but life-threatening skin condition.

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SpunkyRachel discusses physical, emotional healing from SJS

It’s good to hear SpunkyRachel’s voice again. She is the woman we first met last December, who put video testimonials on YouTube about her experience with Stevens Johnson Syndrome, or . In the early videos, her hair is missing and white patches cloud her dark skin. She had just been released from the hospital, where she stayed for several weeks, much of that time in a drug-induced coma where she clung on to life.

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Life slowly returns to normal for SJS survivor, SpunkyRachel

Rachel, known as SpunkyRachel online, says she was caught off guard by friends – both old and new – who had seen her videos on YouTube. She had posted several of them these past few months – some with her bald head uncovered and her dark skin blotched with white patches.

Rachel was looking for others like her – people who had taken common medication, like ibuprofen from the super market, and had a severe adverse reaction called Stevens Johnson Syndrome (SJS) or its most severe form toxic epidermal necrolysis (TEN).

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Woman recovering from TEN hopes to form YouTube community

“I was a fairly attractive woman before. Now I’m just butt-ass ugly,” says Rachel, known as SpunkyRachel on YouTube. She says this on one of the videos she has posted to the site. She hopes they will spur a YouTube support group for others like her, who have lived through the pain and are recovering from Stevens Johnson Syndrome (SJS).

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